Bad news…
I went to see the new MS specialist this past week. It was a 2 hour visit!! I love how thorough she is. I showed her my injection sites.
She agrees with me that this is not acceptable. She gave me a few other options of medicine. Two other shots and a new pill that just came out a year ago. The problem with these medicines is they all can affect the liver function and my blood counts. I will have to get them tested every six months. I tried a couple more weeks of shots, until now. I’m done. I’m so tired of the itching and pain. I can say I gave it my all. I gave it three months.
Those of you that know me, know I’m very stubborn. I wanted this copaxone shot to work. This shot doesn’t have sided effects except for the site reactions. I kept thinking that I can get the itch under control. Friday I called the doctor and asked more about the pill. I’m switching.
Saturday morning I woke up with some back pain. I didn’t think much of it. Then Saturday night I went to our church’s Saturday night session of stake conference with Ricky. Oh man. I loved all the talks and the music, but I was beginning to get very uncomfortable. My legs were killing me. The back pain was coming and going. I sat there thinking I needed to leave. I felt bad though. I left only 10 minutes early. I knew I needed to get home. I barely walked out. Luckily we sat right by the doors.
I came home…cried…prayed…and cried some more. I’m so mad that this medicine that I was forcing my body to accept didn’t prevent this flare up. The purpose of this medicine is to prevents these flare ups! I called the doctor on call. She said yes indeed it is a flare up and gave me a high dose of an oral steroid. 30 pills at lunch today, then 15 in the morning and 15 at noon for the next few days. We are hoping it calms down the flare up.
I will continue to do my best. I’ll keep my faith that The Lord knows what he’s doing. He knows me. He will heal me. I know I’m not alone in this.