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Day 56

They say Becca will have good and bad days. Today was certainly a bad day. She woke up in severe pain that almost wouldn’t quit. My feeling is that her nerves are firing again, which I’m told yields a ton of pain. We almost had to take her to ER to have them take care of the pain. But with the help of a blessing, she was back to tolerable amounts. The side effect was severe drowsiness and fatigue. But I will take both of those any day. She is doing better tonight, but I think she is ready for a new day.

We are holding up, wanting to be strong and win the war. It’s tough, but it’s worth it. Keep praying. Thanks again for all the love, support, and just being there for us.

Day 55

We made the trek to the doctors today. It’s amazing that you have an appointment at 3:30 and you leave the office at 6:30. It’s even better when you ask if the doctor is running behind and they say it’s only about 15 minutes. Sorry, with all the doctor visits I get a little worked up 🙂

The good news is we now have the chemo schedule for the next 40 weeks. We know at week 11 they do the surgery. We meet with the surgeon on Monday, so we should have a better idea how that will work. It is pretty apparent she will have the surgery to remove the remaining mass in her tail bone. Our goal is to have the surgery and come home for the remaining treatments. The doctor at Huntsman spoke highly of the UT Southwestern network, as well as the Baylor network in Dallas. So, we might end back in Zale after all 🙂 The treatment schedule is off and on during the weeks. The sad part is every treatment will be done via the IV and in patient. We can’t use the chemo pill or do it at home. But that’s ok, we love to stay in hospitals… just kidding!

Becca did well today and worked hard. We had several visitors, even some from Dallas! It makes her day when she receives a surprise like this one. I thought I would share a picture of them. Thanks so much for the love and support… we are hanging in there and fighting the fight! Keep praying 🙂

Day 54

Wow, I missed a day! Sorry for that. I suppose I’m still getting used to the new routine. Becca is doing really well and is walking so much better. She actually walked from her bedroom to the living room without the walker today! We had the PT come by yesterday and work with her for a short period of time. The guy also works with kids with Down’s, so he was thrilled to see Cameron. All in all she is getting a little better each day. We have a visit tomorrow with the doctor so we should have a better idea of the chemo schedule.

Please keep praying for strength and the shrinking of the tumor. Thank you all so much!

Day 52

Wow, there is defiantly comfort found in the hospital. You might want to call us Dr. Randy & Dr. Anne. It’s amazing how much you depend on your nurses, but after being home now 24 hrs, I think Becca misses them the most! It’s almost comical how big her eyes get when I have to flush her PICC lines. But after all, we have been there watching through all this, how hard could it be? Becca definitely has a sense of humor 🙂

She is doing well and is trying to heal now. We had a very busy day trying to get everything organized and set up for ‘home’ care. It’s strange how much stuff you really don’t have around the house for something like this. We also went and had a follow-up at the Huntsman center for an additional medication. There really isn’t enough time in the day, but everything seems to get done. We are just thankful for all the help and willingness to help. The next few days will be tough for her, but soon this will all be a memory…

Day 51

We broke her out, Becca made it home (her parents home)! At about 6pm tonight they finally allowed us to take her out the door 🙂 We have to go back up there for some medicine tomorrow afternoon, but she wanted to go home rather than spend another night in the hospital just for that. The boys were thrilled to see her. Little Michael asked us if she was able to spend the night tonight… it was precious.

So now we will have a nurse come by the home each day, as well as PT & OT. In the next few days we should be able to take her to therapy in a clinic, rather than in the home. I went to fill the medication tonight, boy was that fun 🙂 It’s amazing how easy it is to get medicine in the hospital, but getting it filled outside is a mess… but it’s worth the trade off just to have her home!